Synopsis
When he was 29 years old, Stephen Heywood was diagnosed with ALS -- also called Lou Gehrig's disease -- and told he had two to five years to live. But Stephen and his family refused to accept the doctors' death sentence. So Much So Fast follows the Heywoods' passionate, acerbic, and relentlessly hopeful reaction to a disease that transforms their lives. Stephen's older brother, Jamie, starts a foundation dedicated to finding a cure through fast-paced guerrilla science that attracts both praise and controversy. Stephen gets married and he and his wife, Wendy, have a son. They confront the encroaching paralysis of ALS with a mix of courage and humor, and, surrounded by friends and family, upend the cliches of their situation. From Oscar-nominated (Troublesome Creek) filmmakers Steven Ascher and Jeanne Jordan, So Much So Fast tells a haunting story of one family's unexpected answers to some of life's biggest questions.